Day 146: I’m About Over All This Surgery Now

I met with my surgeon earlier this week to clue him in on my recovery, or lack thereof. Before my 2nd procedure (the physical manipulation and steroid injection), I could open my mouth 15-16 tongue blades (roughly 22mm if my memory serves me right). It’s also about one sandwich width, provided I don’t stack it too high with tasty meats. After the procedure, I was only able to get it to about 14 blades. If you recall, I was pretty disappointed.

IMG_20160522_191916
I hadn’t planned on taking such a sad picture, but given my 6 hours of sleep ALL weekend, it’s just how it came out.

My surgeon was also disappointed, and he outlined me two choices from here. Really, though, they’re not choices, they’re what I’m going to do. First is PT, which I’m trying regardless. We are strongly hoping this will help because after PT, comes another SURGERY (not just a shot this time, but back to actually being opened up).

Before I expound on the above statements, let’s take a brief detour to talk about my luck. My surgeon, who is a great person, was technically retired when he did my procedure. In fact, he confided that he would have pawned me off on his assistant had my insurance company not been such a headache (switching surgeons may have caused the insurance company to notĀ approve the surgery, which took 8 months the first time). So him being retired is something of a problem, as he’s only in the office once a week (Tuesdays) at best, and even then only for a few hours. He’s available on his cell because he really isn’t available any other way.

He has a physical therapist that he loves and who specializes in jaws. So he called her to see if she could take on a new patient. The good news? She can. The bad news? She’s going on an indefinite sabbatical in 3 weeks. While she “might” work one day in June and one day in July, it won’t be at her current office (she’s selling her practice) and there’s no guarantee of anything after that. So there’s some urgency in getting to see her. And some urgency in her being a miracle worker – like Miracle Max but without the being dead part.

I went twice last week, and her manipulation of the muscles (she thinks a major problem is the rigidity of the muscles in my mouth – if you open your mouth put your thumb all the way back to one corner of your mouth, those are the muscles we’re talking about here) is not in any way pleasant. I need to ice it as I massage because it risks inflammation. I’m also supposed to be taking anti-inflammatories regularly. Instead of tongue blades, I now take clothespins, jam them between my molars, and open them. I have a few other exercises I need to do regularly, none of which I’d classify as remotely enjoyable.

It sounds pretty drastic because, well, it is. She’s cramming months of PT into a few sessions. She *hopes* that she can talk to my normal PT (for my back) to see if someone there is trained in jaws and can continue what she’s doing, but again, no guarantees. So in the meantime, I have six sessions where she’s going to try to knead the crap out of my face.

And that’s the best case scenario. In one day she got me from 20mm to 22mm, which is something but not incredible. So the hope is that in the four remaining sessions, I can be enough on the right track to where I can get someone new to continue it, and with great success.

Remember that graphic I put in a blog about my jaw about six weeks ago? This one:

JawGraphic

I spoke about how he thinks the condyle is not actually getting to where it needs to be in the disk, how it’s not “clicking” into place. Well, if PT doesn’t stretch the muscles (and disk) enough to facilitate that click, the next surgery is to remove the disk altogether. If you’re like me, you’re thinking “But that doesn’t sound like a good idea, don’t you need that disk for something?” Because that’s exactly what I thought, being someone who liked all my body parts. Hell, I won’t get rid of my appendix unless I absolutely have to. And my surgeon’s response was that he doesn’t think it’s where it’s supposed to be anymore, thus not actually serving the purpose it’s supposed to, so it won’t exactly be a problem to get rid of it. Hard to argue that logic. It’s why Boston cut Pablo Sandoval, after all. (non sequitur zing!)

But it still stands that I don’t want any more stinkin’ surgery. I’m so done with it. So here’s to hoping my crash course in PT does something. But I have this nagging hunch that before long I’ll be going back under the knife. Under the tutelage of someone who retired almost a year ago. After the failure of someone who is very likely retiring during my treatment.

PAIN: 0

INCONVENIENCE: 3

REGRET/FML FACTOR: 5

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