First off, this recipe is pretty awesome. Ash used to make it quite often, and I made it last night. I think we may be having it less and less because the meat does not sit well with Ash, but I might have to keep some ingredients around to make it for myself as a healthy alternative to just having red sauce. Now if only Landen would eat pasta with anything other than red sauce.

I put caffeine back into my diet. Well, sorta. Before each disc golf tournament, I would always have an Amp energy drink. I felt it woke my body up (even if I myself didn’t feel much more awake). Well, after a two-month caffeine hiatus, I tried it before Sunday’s one-round tag tournament at the Ranch. And what happened? I had the shakes. I mean, my hands weren’t actually shaking, but I didn’t feel quite right and what resulted was the worst putting I’ve had in a round in 3 years. I missed 7 putts within 30′, and 6 of them were probably within 16-22′. A couple of them were air-balled. I just had no release. It’s like my hand wasn’t listening to my brain. I’m not the world’s best putter, but I should be making at least half from that distance, if not 5 or 6.

What did I learn? Well, I am not going to have an Amp before tournaments anymore, that’s for sure. I’m also making a resolution. I did not feel any craving for caffeine during my cut-out. However, I just missed the taste of Mountain Dew. So going forward, I’m going to just moderate myself. I will never have more than one case (12 cans) a month, and I’m only going to buy it when it’s on sale (no more than $3/12 pack). I think it’s a pretty healthy concession.

Finally, I’ve put cheese back into my diet, having 3 different cheeses in large portions in one day. I am not noticing a drastic change for the worse with it. When I used to eat a quesadilla (sp?) I’d almost always have stomach pain and I attributed that to the cheese. Well, it might have just been the tortilla. I had 3 last week and other than (spoiler alert: I’m about to talk about my bodily functions, so pass to the next paragraph if you don’t want to know) some fairly typical immediacy in my BMs the next morning, there wasn’t a difference.

On a final note, I’ve gotten downright terrible taking my pills. I think it’s been a week since I’ve had my calcium and magnesium citrate. I didn’t notice much of a difference when I was on them, but in general my body has been fairly happy over the last 4 months (at least my digestive tract – my back, not so much).

Onward and upward.

Well, let me start off by saying I’ve made it through my six week initial period. How did I keep with my diet? Well, that has very much to do with my trip back east. The night before we left, we went out to dinner, and I had a dressing that had a bit of cheese in it. It was by mistake – I just poured the wrong one on my salad. So that was a minor slip-up, but so far I hadn’t really deviated from my diet in any substantial way. But then the trip came. Let’s break it down.

Gluten – I am pretty sure I kept gluten free the entire time. I have realized that I’m not so stringent on my eating foods that are processed in plants that processed gluten, or on that equipment. The fact of the matter is that my intolerance is not super severe and I don’t think that that’s the worst thing in the world. Even having said that, I only broke that convention only once or twice.

Caffeine – Haven’t touched the stuff since. I miss the taste of Mountain Dew, but I don’t think I’ve had any caffeine withdrawls. I really think monitored myself pretty closely BEFORE the diet (rarely having more than a single can a day), so that helped. I think in a few weeks I’m going to have a can of Amp before a round of doubles or a mini-tournament to see how it affect my play. Then, if it seems to go okay, I’ll add a can of Amp before tournaments. It always seemed to give me a boost. But yeah, this has been no problem.

Dairy – I’m trying to think, but aside from that small slip-up with the dressing, and eating the chicken at Qdoba (which is not dairy-free), I’ve kept pretty good here. At the 6 week mark, I’ve put diary back into my diet. I’ll talk about that briefly.

Alcohol – This is where I did not make it 6 weeks. To be fair to myself, I excluded alcohol NOT because I felt I had an allergy to it or because I felt I was drinking too much (I probably average a bottle of wine every two weeks). I excluded it just as a system cleanse kind of thing. When I heard the news of Gavin on Thursday morning, I didn’t drink on Thursday, or Friday, but Saturday night (the day before driving up to see him), my emotions started swirling. I had a single glass of wine that night at my sister’s house.

Then we drove up and went out for drinks with Jay and Jen that night. I had two drinks. At that point, I felt there was no point for the last few days going back on the wagon, and I had a drink or two over the next few days. Then, of course, I hung out with my two bosses, and they plied me with liquor, so I guess that fortunate that I had already stepped off the wagon. In fact, I might be drinking a glass of wine now. However, like gambling, I know I enjoy it, so I feel I monitor myself quite well. I’ve had no adverse effects from drinking, probably because I’m keeping it pretty moderate.

Anyway, the six weeks has come and gone. How do I feel? Well, Ash pointed out that I haven’t been complaining as much of Reynaud’s symptoms (cold hands and feet even if I’m sweating hot) – that’s true, but it also has been 100 the last week. So hard to really point to causation, but that’s at least a bit encouraging.

My skin has been back and forth – my rosacea has come back worse than ever, and I’m not really sure why. I DO know that I’ve been pretty lousy with my medications in general. I started supplements a while ago, and I end up taking them only 1x a day (instead of two) if at all. Not good. I have to get into a habit there.

My stomach has only had the one issue, although I still have frequent urgency with my digestive system. I was hoping some of that would go away.

I’m not so bloody tired, and I do think that’s the caffeine. But man, I miss Mountain Dew’s sweet savory taste.

So I’ve put dairy back into my diet. Originally, I was only supposed to incorporate one thing at a time (butter for a few days, cheese for a few days), but that kinda went out the window. I had potatoes with butter and milk in my first night, but then had MILK with my breakfast the next day (I grabbed the wrong carton and didn’t just want to throw out the bowl of cereal), and I’ve also had a little bit of cheese in one meal. None of that has seemed to have too much of an effect (save a bit of urgency), but I still think I’m going to try to be more methodical. If I eat cheese, I’m not going to have any dairy the next day to see what happens.

Anyway, I plan on staying with the GF. I have no reason not to, other than I really miss regular pasta. But life goes on. I’m learning how to cook other stuff, I’m perfecting the art of sweet potato fries, and I made it through.

I’ll still occasionally post about the diet. If I find any good recipes or if you have any, let’s post ‘em.

Oh, and by the way, these chips rule and are GF (and available at Costco) – they’re the new staple in our house.

Note: this is probably the longest blog post I’ve ever written. Forgive the typos and tense-shifting, I’m not proofreading.

By now, you’ve probably read why I went east. The reason wasn’t fun, but I was looking forward to it. However, Ash was going with me on the flight, and as you know, when Ash flies anywhere, things just go wrong. Not only was this trip not an exception, it might have set the standard for all future shitty trips.

This is as comprehensive a list as I could remember of what went wrong. I’m leaving off minor things like the food we ordered not coming out right (which happened a few times during the trip) or the muggy weather. This is everything else, broken down by day.

THURSDAY

We heard the bad news and booked a flight. Landen had less than 24 hours notice, but he handled it like a champion. While not totally packed, we were pretty good that night. Our flight left Friday at 10:40, enough time for me to get an hour or two of work in.

FRIDAY

After a little more packing (but not everything), I head to the office to work. Landen comes in a few minutes later saying, “Mommy needs your help.” I go to her and she says “Call 9-1-1.” Duncan had been choking and vomiting and crying for about 20 seconds by this point. I call them and the responders show up almost immediately. This is a little over 3 hours before our flight. By the time they arrived, whatever he’d swallowed made it past and he was okay, though shaken up. Ash had found an envelope with some coins and he had a penny in his hand. We assumed it was a coin, but we weren’t sure.

Because we weren’t sure, they recommended going to the ER to get an X-Ray, make sure it wasn’t a) anything sharp or b) a quarter. Ash says she still needs to pack, but I tell her to take Duncan to the ER and I will get Landen ready and we’ll go. At worst, Landen and I would still make the trip, but Ash and Duncan might not. Turns out they did make it (after security, we were there about 45 minutes before our flight was scheduled to take off – our flight was actually late anyway, but we didn’t know that at the time.)

But in my haste to pack, which I wasn’t ready for, I left some stuff at home: Landen’s blankie and stuffed monkey Buddy, Duncan’s birth certificate, and some berries. Most of these would actually be irrelevant, but not all. In the process of packing, my back gave out. It would continue to get worse every day of the trip.

The flights were fine, and the airline didn’t ask for Duncan’s birth certificate at all, so we dodged a bullet there. Actually, somehow (and I’m still not 100% sure of how this happened), Landen managed to flush his underwear down the airplane toilet, and for the rest of the trip, every time he went to the bathroom he was deathly afraid of losing his underwear.

SATURDAY

This was a day where we were just going to take it easy. For the most part we did. We even managed to sneak away and see some friends so they could meet the boys. Landen and Nathaniel (Aaron’s son) got along great and played with cars and trains until they were well-past bedtime. It was this night that I broke my diet. I will have more about that in Part 3 of this journey.

SUNDAY

Because of the last-minute nature of this trip, we didn’t work out many logistics. Thankfully, Tracy and Jerry were AWESOME and flexible and extremely accommodating. They let us use their car to drive to CT for the wake and burial, for which we were extremely grateful, and they even watched Landen for two days while we did it. The drive up was rather uneventful, though we later heard we just missed a mega accident that forced Aaron and Julia to turn around and not make it. That might have been the one bit of luck that actually found its way to us.

A second thing we didn’t have planned was where we were going to sleep while in CT. Worst came to worst, we’d get a hotel. But Jaymar had given me the # of a buddy of his. I never got ahold of him, but while at the viewing, Jay and Jen hooked us up with this lovely couple (very good family friends of Jen’s) who volunteered to put us – total strangers – up for the night. They even gave us their GPS to find their place. They simply said “punch in HOME and you’re good to go.” Maybe things WERE looking up.

After the very painful viewing, Jay and Jen invited anyone who wanted to to come out for dinner and drinks and just some camaraderie. During dinner Duncan started getting fussy, so we made new plans. Ash would take the car to get Duncan back to Gail and Kevin’s (the very nice couple). I would hang with Jay, have a drink or two, and mooch a ride from somewhere back to their place. Great.

About twenty minutes later, I get a call. Ash says there’s a problem. She’d already been driving 20 minutes and the next direction on the GPS was to follow that road for 25 miles. Knowing something was wrong, she pulled over. Just then, she notices the AC in the car stopped. And the hood started smoking. GET OUT OF THE CAR! She pulled Duncan to safety, but now she had two problems. She was lost despite having a GPS and her car was leaking fluids in a not-at-all-good way. The next twenty minutes are spent in a mad game of Operator. Ash can’t reach Gail. She calls Triple A. Gail’s daughter (who happens to be at the bar – one of Jen’s close friends) is trying to reach Kevin, her dad, who is both a firefighter and a mechanic (convenient!) Finally, we make new plans. Kevin and Gail will take two cars to pick Ash up (she is probably 40 minutes from their house). Gail will drive Ash and Duncan back to their house, Kevin will wait for AAA to tow the car back to a VW dealership in the same town as the burial the next day.

We found out what happened with the GPS too – they have a summer home in Vermont, and they still had that address set at “home”, and Ash who is not from the area, didn’t realize it until too late. Yeah, that actually happened.

Meanwhile, at the bar, I decide to order one more very stiff drink, knock it back quickly, and head out with Gail and Kevin’s two kids and Jen’s sister to get back. I finally do make it back (before Ash) and at last we all arrive at Gail and Kevin’s house. The car was towed to the dealership, we hoped it wouldn’t be bad, and we tried to sleep. Nobody really succeeded, though. Duncan barely slept and Ash hardly slept because the only way Duncan would sleep is if they shared their (single) bed. I had a tough time sleeping because of my back.

MONDAY - After Gail made breakfast (seriously, they went ABOVE AND BEYOND the call of duty for complete strangers) and we finally determined that our car would be looked at that day, we went to the burial. After the burial and before lunch, Kevin took us to the dealership, where they told us they had no news. Ash told them that we’d need to rent a car soon and we needed to know as soon as possible. They said they’d try.

After lunch, at Jay and Jen’s insistence, we headed back to their house for a few hours. This was to buy us time so hopefully we would get news of the car. We DID get a call saying it was a hose or belt, and that it wasn’t too big a deal, but they were going to replace it and run it a while to make sure nothing else had gone. Best case scenario (ha!!) Ash would be on her way with Duncan that night – Landen was getting very antsy without us by then – and she would drop me off at my boss’ place in south CT to stay with him.

They called back to say that the water pump had also gone and that would take a long time. Kevin agreed that that was a definite possibility given what he saw, and there’s NO WAY it would get done (they told us this news at 2). We begged and pleaded and explained our situation, and he said he’d try, but no promises. Ash gave up and just ordered a rental car. She and Duncan left and I was to wait for the car. Either I would be staying with Jay and Jen (which I had wanted to avoid – to give them their space) or I would have a car and would drive down to my boss’ house.

Jay and some friends decide he needs a walk, so we take a 2-3 mile walk at a nearby park. It was nice when we got there. With about 1/2 mile left, the winds pick up and the sky darkens. Suddenly, THROUGH THE WOODS we see a storm moving in. Someone’s phone rings – it’s a relative saying that the area is basically getting hurricane conditions. The skies open up. DOWNPOUR. Hail, lightning directly overhead. We assumed it was Gavin who had just found the weather control console and REALLY liked pushing the red button. Over and over again. We get back to the car drenched but okay. Just before the walk I had gotten confirmation that the maintenance crew busted their ass and the car was ready. Following a change into dry clothes, Jay and I have dinner and he drops me off to get it.

I bid farewell to my friend, pack up, and head to south CT. I meet my boss there and explain what has happened so far. I needed two drinks in me to even get it all out.

TUESDAY

My company asked me to come in for one day during the trip to meet some new employees. Also, Ken, the original boss, was celebrating his last day with the company at his upper west side home that night, so it just made sense. But now we had a problem. Ash was supposed to drop off her rental car in NJ, then wouldn’t have a way to get her, Landen, Duncan, two car seats, and a stroller into NYC, and Tracy wouldn’t be able to drive her because it was Knox’ first day of  daycare. I was in the city with Tracy’s now-fixed car, but had no way of getting to Jersey. After many many many phone calls and planning, Ash changes her location to drop-off the car to a Hertz in NYC, not far from Ken’s, and that’s that.

However, at work, I spent an hour fighting with my computer, as it isn’t working properly. The IT team does a fix that works for about twenty minutes. Bear in mind, I hadn’t worked much of the last few days because of Gavin’s funeral, so I’m very far behind and need every minute I can get (particularly because the office was closing early for the party and 4th of July). Another hour passes and I give up and go to another computer. THAT one isn’t working properly either. We end up having a 2 hour conference call, further reducing the time I have to get stuff done. Add to that my cell phone stopped placing calls while in the city. I was not a happy camper.

Finally Ash comes in with the boys a little late and we start to head over in 90+ degree heat. We divert our trip a bit so we can hit the subway (Landen was promised a train ride). He had a great time on the trains, though they were too loud for his liking. The party itself was quite enjoyable, and I think I ate more red meat than I had in the past two years combined. Scrumptious.

By the time we finally made it back to West Milford, it was after 9. I had to lay down immediately because my back (remember that?) was in so much pain that basically utilizing the muscles hurt so so much. I had a glass of wine and went to bed, hoping it would be better in the morning.

WEDNESDAY

Fourth of July. And my back was worse than ever. I took two ibuprofen in the morning just to make it through the morning. After some pictures and last-minute packing, we head out to the airport about 1.5 hours early. When we check in, the guy asks us for Duncan’s birth certificate. We don’t have it. He says he can’t go on the flight. Ash and I don’t quite realize right away that he’s totally serious. He asks again and we tell him we really don’t have it – it’s in Reno. Ash points out that he has no teeth, can’t talk, and can’t stand. The guy replies: “I know old people that don’t have any teeth. I need proof of his date of birth. It’s on our website.” He tells us to have it faxed. By the time someone were to go to our house and get it and fax it over, we would have missed the flight. Ash breaks down while I try to get the hospital on the phone. (The Doctor’s office is closed, mind you, because it’s a holiday).

After two calls and speaking to 4 people, Ash gets this unpleasant woman who won’t help us – it’s against company policy to give out that information. Finally, the Southwest guy asks to speak to her. He runs around in circles for more than five minutes. The hospital wants authorization – we’re right here! We give it! – and then says that won’t work, they aren’t allowed to give that out. Finally, the Southwest guy says “Just say yes or no. Was Duncan born on 10/12/11? And she keeps fighting him, though at one point she says “yes, but I can’t fax you anything.” After more than five minutes of fighting (we’d probably been in line 25 minutes at this point), the guy instructs me to just hang up on her. He is willing to accept that very unofficial acknowledgment of his date of birth. He (fortunately) ushers us to the front of the security line and we make it through with about 15 minutes before our flight boards.

The flights themselves were okay – Duncan wouldn’t sleep unless he was being nursed, so Ash basically fed him for four hours. Landen did great on all the flights, but he’s still a 3-year-old and that’s draining.

At our layover, my back hurt now so much that I laid on the floor to try to fix it. And when I tried to get up, I couldn’t. I tried three times and I literally couldn’t use my back muscles to help me up. Ash brings more ibuprofen and I suck them down. We instruct Granny to meet us at the Reno airport with something stronger. It is probably the most (prolonged) pain I’ve ever been in.

The rest of the trip went without too much hassle and we made it home.

The results? My back is better now. Duncan DID swallow a penny (it came out during the wake), and all our hosts rocked our socks. We  were able to be there for Jay and Jen, a few friends got to meet our kids, I got to have a send-off for the one-time boss who basically enabled me to move across country and marry Ashley… it wasn’t all bad.

But most of it sucked.

This is going to be a several-part series about my unexpected trip east. It was originally just going to be about my diet (which I’ve made a few concessions on), but I figured I had to get more involved. There will be subsequent parts about my diet and about all the crazy stupid things that happened to us, but first, a moment to talk about why I left.

A very good friend of mine, Jason Marshall, and his wife Jen lost their 15-month old son Gavin a week ago. Gavin was born with congenital nephrotic syndrome, a very rare genetic disorder that causes his kidneys to leak out proteins and other nutrients.  While I never looked, I was told the mortality rate of this extremely rare condition was quite high (more than 50%?) So I don’t think anyone would ultimately say it was totally unexpected that he passed, but what made it most surprising was the timing.

The first year of this condition is the hardest, and he made it through more or less unscathed. Despite having to have frequent treatments (at first they were daily and then every other day, for four hours, in the hospital.) After many months, they were able to transition to home treatments, but any sort of complication (such as a low-grade fever) meant they had to go back to the hospital, and it was usually for several days or a week or more. However, after a month-long battle at the hospital a few months ago, Gavin had shown signs of doing the best he’d done – gaining weight, being in great health. Jen had recently taken a video of Gavin walking (with the assistance of holding onto things) ALL around the room. Then, last Thursday, he simply stopped breathing. Despite the valiant effort of the EMTs, they could not bring him back.

I heard this news at around 7:30 am last Thursday. By noon, I had already made plans for the whole family to head over to New Jersey and then Connecticut to be there for Jay and Jen. Now, I’m not a godparent to Gavin or anything, but I always felt there was an extra-special kinship that the Marshall family and ours shared, despite the kids never having met. Jay has probably spent more on cool onesies and gadgets for Duncan and Landen than we have, and I was fortunate enough to be able to give parenting advice here and there for Gavin (I was one of the first of Jay’s friends to be a father.) So it was a no-brainer for me to be there.

Let me tell you about Gavin. In 15 months, he was able to touch more lives positively than most people strive to in a lifetime. He was loved like few others out there, and he loved with such amazing strength right back. He had a smile that melted hearts, and they melted often as he smiled all the time. There were a few things about Gavin I noticed in the two times I’d been fortunate enough to meet him. He was trusting, loving, and incredibly bright. He taught those around him so many things: how to fight, how to scooch, and how to love. But the one thing he taught over all else was how to smile amid adversity. His life was about as challenging as you could get for a child of any age, yet you’d be hard pressed to find a photo of him not grinning ear to ear. In fact, among the photos at the wake was one where someone had held up a clear drum-head, and Gavin put his mouth up to it and blew, puffing out his cheeks. It is one of the greatest photos I’ve ever seen.

As I said, I was lucky enough to meet him twice. Once when he was probably less than 3 months old. He slept for nearly the few hours I was at Jay’s house, though I did get to pick him up a few times when he eventually awoke. He was so light at the time, yet I still felt like I was holding not just a baby, but a whole person. The seeds for his glowing personality were already there. But it was the last trip I’ll always remember.

Last month I had to go east for work. I arranged it so I’d have a disc golf tournament to go to in CT. It was an excuse to try to get up to see Jay and Jen and Gavin. It became immediately apparent though that the plans just didn’t line up – Gavin was basically confined to his house on Saturdays for his treatment, and I had to be back in Jersey by 7 for another obligation. But I was driven at the time to see them for reasons I didn’t know then. I borrowed a car and woke up at 7:30 to drive 3 hours up to see them when he got up from his nap. Before I  drove down 2 hours to practice at the disc golf course I would have at tournament, I squeezed in maybe 3 hours of hanging out. In all, I drove 5 hours out of my way. But I was resolute in my desire to go. While there, I got to see enjoy the magic that is Gavin. I took some photos with him and of him playing with a friend’s 4-month-old. I got to watch him perfect the art of forward-scooching. I took him on a walk, just him-and-me, to the pond in the backyard, where we talked about fishing. And most dear to me, I got to play a simple game of rolling a ball back and forth with him for more than 5 minutes. At the time, I thought it was simply really cool. Now I think it’s one of the coolest thing I’ve done in a long time.

It’s not just me. The scope of people that Gavin affected is far-reaching. I would estimate there were several hundred people who filed in and out through the 4-hour ceremony. Family, friends, neighbors, and friends-of-friends. Perhaps the most touching was the stream of nurses and doctors who visited. I had heard that many nurses had stopped by, and those that weren’t there were covering other nurses’ shifts so more could come. I don’t know the tally, but I do know these people were simply doing their JOB and they fell in love with Gavin and had to pay a final visit. The nephrologist (sp?) came by too, and she had just retired two weeks previous. If one of my clients passed, I doubt I’d even know. When Gavin passed, everyone knew, and everyone cared more than they might have thought. I know I’ve cried more tears this week than I have in the last 5 years put together.

I’d met Gavin twice in fifteen months. In that time, I’ve not seen my mother at all, nor one of my brothers. I’d only seem my twin brother once. There was something special about Gavin, and I feel honored to have ever met him. I know many there at that wake had never had the pleasure.

Gavin Robert Marshall, rest in peace little buddy. Your smile has made – and will continue to make – countless people smile in return.